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 Updated 30.08.2017

 

EPSO working group for patient and user participation in supervision

 

Participants: Lena Weilandt (Chair), Sweden; Tove Gemzell, Sweden; Hanne Sognstrup ,Denmark (NBSS);        Else Lund Frydensberg, Denmark (NBSS); Birgir Jakobsson, Iceland; Diana Dumina, Latvia; Charlotte Hjort, Denmark (DPSA); Torsten Larsen, Denmark (DPSA); Sorien Kleefstra, The Netherlands(IGZ); Paul Robben,

The Netherlands(IGZ); Renee Bouwman, The Netherlands (NIVEL); Bente Smedbråten, Norway; Hanna Ahonen, Finland;Riitta Aejmelaeus, Finland ; Jooske Vos, EPSO; Mari Murel, EPSO;

 

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NEXT WG MEETING WILL BE HELD in Reykjavik 27th September 14:00-17:00

at Embætti landlæknis (The Directorate of Health ) offices, Barónsstíg 47, 101 Reykjavík

Agenda and Invitation letter from the working group chair:

 

170828 Invitation to workinggroup patientuserparticipation sept 2017.pdf
Download

 

170829 Agenda patientuser participation Working group Iceland.pdf
Download

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 Previous working group meeting was held 24th  April 2017 in London.

 

See WG Chair Lena Weilandt presentation:

 

Presentation EPSO 24th april 2017 London Weilandt.pptx
Download

 

Input from CQC- Chris Day, Director of Communications:

 

Chris Day London 2017.ppt
Download

 

Input from Denmark, Socialstyrelsen- Henrik Frostholm:

 

EPSO - WG patient and user. Henrik Frostholm - London - April 2017.pdf
Download

 

Letter from the chair to the working group members including Agenda:

 Download

 

 

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Member interviews-with 11 participants from different European inspectorates were held.

Aim of this interview is to make an inventory on generic level of best practices ,unsuccessful cases and risks and effects of involving users to supervisory practises. Results will be presented in London.

 You can find the interviews here: UP INTERVIEWS Member access only, please ask access from EPSO secretary

161205 User Participation Member interview format.pdf
Download

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 Last working group meeting was held in Stockholm, 28.09.2016

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 Background

Many countries have the views and perspectives of patients and users as a central part in their policies and strategies for supervision. Some countries have put this into action by having patients and users as active partners in the supervisory activities.

Objectives

•Develop a network to identify ongoing projects and methods for patient and user participation.
•Share knowledge, experiences and evaluations of the different methods.
•Identify and support ongoing research.

 

Suggested forms for cooperation

Chair of the working group Health and Social Care Inspectorate, Sweden

Initially one or two physical meetings to identify specific goals of the network based on the expectations of the participants.

The main channels for discussions and exchange of information will be by mail and through EPSO web.

 

 See Jooske Vos presentation :

"former working group activities on user participation.pptx"
Download

 

See Lena Weilandt presentation:

EPSO User Participation Lena Weilandt.pdf
Download

The working group presentation by Lena Weilandt can you find under the 'Meeting memos' below:

Meeting memos  accessible to EPSO members

(please ask access from EPSO secretary)

 User Participation was also one of the main topics of EPSO 22nd conference at Stockholm 29-30 September 2016 - see Stockholm 2016

Additional material:

Kleefstra et al. 2016: Investigating thePotentialContribution of Patient Rating Sites to Hospital Super vision: Exploratory Results From an Interview Study in the Netherlands.

Download

 

 Previous activities:

 

Click here to open the report of user participation. This report was published in the Brussels conference in 2013.